I haven’t blogged in a while, for a few reasons. Not much has been happening/changing so not much to report and also I’m back at work 0.8 (4 days a week) so not a lot of spare time!
Beau is amazing, as per! Like, incredibly amazing!
We had clinic a week ago and the FANTASTIC AMAZING news is that Beau’s HbA1c number is in the normal range! Normal! Like whaaaaaaatttt?!
The team said it was because we are working so hard and doing such a great job managing his numbers. I also think it’s because he’s ‘honeymooning’.
It was such exciting news, and really gave us such pride in our boy and in our journey and knowing that all the stress and hard work is seeing progress!!! I am trying to celebrate the successes now as I know only too soon we will be getting not such flash reports as Beau stops making his own insulin! So yay!
Also at this clinic, we received our Pump Start date! Eeeeeeee!!!!! In less than a month we will be spending 2 days at the hospital getting Beau set up on his pump! Wow, things are moving so quickly and we are so happy with this news! It’s super exciting!
While there, KW and I had to put in our own pump sites that Beau will have inserted into the top of his bum. We put ours in our tummies. It didn’t hurt! And, incredibly these only need to be changed every 3 days! Which is SO much better than the 4 insulin injections a day that Beau currently gets.
I’m nervous, and excited about these new changes to our lives. I’m slightly worried about the big pump that will be attached to Beau and how huge it seems next to his tiny body! The pump rep came to visit us on Wednesday evening and she did say he will ‘grow into’ the pump. He’s just so wee!
More exciting news was that since Beau was diagnosed on 3rd December 2018, he has now put on 1.85kg and grown 2cm in height! Yeah buddy!
In general life news, Cooper is coping much better now he is back at school and in routine, which is awesome!
I am… getting used to my new normal! Having 8 weeks at home to deal with it all was such a lucky thing and perfect for me who worries so much anyway. The communication we have with preschool is outstanding and during the day his teacher is in contact with me a few times, with wee messages on how he’s going and what he’s up to etc, which is such an extra treat!!!!!! Sooooooo lucky!
I am so happy I’m able to trust people and with the app on my phone so I can see what Beau’s BGL is doing in real time while I’m at work is incredible!!!!!
It’s good for me to get back into work, and I love it – but I do miss my wee man. He just loves preschool though and every night at ‘Best Bits’ at the dinner table he says ‘going to preschool!’ Such a honey!
We had an appointment with the ENT specialist who put in Beau’s grommets in Dec 2017 (and took Cooper’s tonsils and adenoids out earlier that year!) and they are still in his ears which is a win!!! So one less thing we need to worry about. They would like another follow up in 6 months so hopefully we can stay on top of this part of Beau’s health too.
We are off to a wedding in the north island in 13 days. SOOOOO looking forward to a weekend away with hubby, quality childfree time!!! Eeeeeepppp!!!!! And of course our friends lovely wedding!!! But also so nervous not to see my babies in 3 whole days! Hopefully they will be fine with Nana!
My next blog will be after that I would imagine, as when we get home, it’s pump time!!!!!!!!!!!!!!! Wish us luck!
P.S. Look at him!!!! All the heart eyes
