Sounds…

7B925058-5623-4F89-BC11-07A4EEEEE8D3_1_105_c

(Note, in this picture  I have put up with this post, it shows me bolusing Beau on his pump during our family photo shoot in June. I love that there is a non-invasive cool picture of a true snapshot into our lives!!)

You know how there are certain sounds you hear regularly throughout your life,  just like certain smells, or tastes that evoke feelings?

Recently, I’ve been really noticing all of the sounds related to Beau’s diabetes and I’ve been itching to write them down.

It all started one night, when through the (new house, thin walls) I heard the POP of the testing strip container’s lid coming into our bedroom while KW was in the boy’s room obviously going to fingerprick Beau in the middle of the night. That pop woke me up.

(Now, please forgive me, I am not sure how this blog is going to end up, I am NOT a writer and onomatopoeia is not my strong point!!!!)

As well as the pop of the lid, there’s the beep when the strip is loaded in the reader.

Then there’s the push down of the finger pricker.

Followed by the click of the needle of the pricker being shot out fast and into Beau’s skin.

Then the beep beep beep of his BGL reading being shown on the reader screen.

All of these sounds are made anytime of the day or night…

There is the alarm on Beau’s follower phone alerting us to his low or high BGLs.

Then, there’s the alarm on Kodie’s phone (with a different sound) alerting him to Beau’s low or high BGLs.

Then there’s the alerting music on my Nightscout app if I leave it open if Beau is low or high.

There’s the opening of the fridge to get out the juice box.

The ripping of the plastic straw packet off.

The push-through of the sharp end of the straw into the juice box.

The sleep-slurping of juice.

The sound of juice gurgling down into Beau’s tummy at whatever hour of the morning.

The rip open of a foil ketone strip packet.

The pump beeping when it is site change reminder time.

The rewinding sound of the pump.

The sound of insulin filling the tubing.

The beeping at each step of the way when setting up the pump every 3 days.

The tearing of the alcohol wipe packet.

The characters in chosen cartoons used as a distraction.

Sometimes, I can even hear the insertion of the needle.

The button pressing of a bolus, multiple times to get the steps completed before insulin enters the tubing.

You know what I mean? So many sounds. So many steps.

I’ll also just put a wee update here at the bottom.

I’m currently feeling quite uneasy as we are in Level 4 here in NZ and soon to go to Level 3 (next week hopefully) – I am much more scared of this Delta variant, for all of us in NZ but for Beau.

So, while I am loving us all being safe at home together, and Cooper and Beau are both LOVING it living their best lives at home with us here. There are a lot of other things to consider…

Cooper’s appointment has now been missed so will have to be caught up so we can get a treatment programme underway for him with the psychologist.

I am all up in the air about what is going to happen with Beau starting school. So all going normally (as in no Covid/lockdown etc) he would be having his last 2 weeks of preschool next week and the week after before starting school. Today, the whole staff at his school would have had a teacher only day and had the training from the Diabetes team and pump rep. Of course that didn’t happen.

So… Level 3 next week… when will Level 2 be?

Does that mean there is just no more preschool? Like, ever again???

Does that mean his school won’t be trained in time for him to start but there also won’t be his space available at preschool?

I have organised a few days off (for when he starts school) and KW works mostly from home, so maybe he could start and we will just need to be there taking turns with his care until the staff get the training?

But then will my class be starting back at that time and need me?

But I will always put Beau first so I’ll need to be with him?

But WHEN WILL THIS BE?! lol

Ok, so that is all my huge brain dump. You’re welcome.

Stay safe whānau xx

E8EDDE80-BBD3-4916-B16F-7FED4F2CB5CB_1_105_c

We added more to this after this pic, but Beau was LOVING it – how cute is he?!

DCA9C44A-FD6F-40D7-AAFD-33F976C468D5_1_105_c

He is a maths brain and I tested him on his alphabet knowledge with magnetic letters, which he then quickly sorted into colours. I just loved the photo of him!

4E0E4C16-9355-4AAD-8ACA-29DE8E2708E9_1_105_c

Cool dude walking RockyPups in lockdown.

2 Replies to “Sounds…”

  1. The first bunch of sounds are so familiar to me now as well, from supporting Beau at preschool, and I could hear them as I read your words.

    I feel your unease around the starting school situation. The not-knowing must feel so hard. Has he had his last day with us at preschool? … We just don’t know. Transitions can feel tricky enough, let alone complex ones like these. But what we do know is that Beau will be well looked after whether it is enjoying his last days at preschool, ‘locking down’ at home, or at his new school once his teachers are prepped and ready to help him. Big hugs to you all in these times.

  2. Hey Lou, thanks so much for your lovely comment and empathy. What on earth is going to happen with the school transition?!…. I guess we just breathe and take it as it comes…. Something I’m finding it hard to do lol

Leave a Reply

Your email address will not be published. Required fields are marked *