Rollercoasters

I am NOT a fan of rollercoasters, at all. The lack of the control and the hideous non stopping of them and YUCK. lol

Life is such a rollercoaster! So crazy how one minute you can be celebrating and next you are not.

Diabetes is SUCH a rollercoaster, up and down glucose levels – in a single hour, in a whole day, etc.

On Friday we had Beau’s clinic appointment and it was freaking awesome!! The Drs and nurses were so happy and so proud of us for managing his diabetes so well! We are so proud of ourselves and of our Beau and were actually surprised as we had thought it was going to be worse! We had felt that Beau had been running a bit higher lately and spending less time in range. Basically every day is us (and his amazing preschool teachers! and my Mum) working hard for Beau’s glucose levels to get and stay between 4-8. The clinic appointments every 3 months are for Beau’s HbA1c levels to be tested (the last 3 months of his levels basically in one number… soooo it’s like every single day is the ‘test’ and the HbA1c is the exam result!

We feel so genuinely happy, and proud of all of us that we had such a good result. Beau’s HbA1c is what a normal, non-diabetic persons is!!!! AMAZING!!!

The amount of crap this kid puts up with on the daily with little fuss is super amazing so mostly, we are proud of HIM. But like a rollercoaster, it’s an up and for once, even ME (who’s SUPER hard on myself about managing this, but also pretty much everything in life lol) was actually proud of MYSELF. And of course of KW.

Shit I love my KW. I love how this is not all on me, we are husband and wife. Partners in crime. Mummy and Daddy. He works just as hard on Beau’s care as I do. I feel proud of us! We simply could not do this without each other! I am so lucky, Beau is so lucky. KW is also lucky! haha as is our wee Coops!!!!

Anywho, then came this past weekend where for Beau there was a runny nose and headaches, then temps started and little to no sleep for me! (and him – for the past 4-5 nights now) Actually, said husband we were just speaking of was conveniently out a lot – 3 nights to be exact lol!! So he has been not quite as popular as the previous paragraph mentioned hahaha! Nah, he was all good going out but it gets pretty tough during the night when sleep deprived with a sick baby! In saying that, Beau only wants me anyways so – it is what it is!

With sickness and temps come ketones as you know from my last post, so since our amazing clinic on Friday, we have been worried and it’s just really tough to tackle – sick babies plus diabetes. Seeing ketones is such a fucking worry and although this bout of sickness has only been the second time I’ve tested for ketones and Beau has had them, I still freak out majorly and can’t remember what to do!!!!! Diabetes complicates the simplest of sicknesses and it is my life goal to prevent us from going to hospital!! This time, the highest I saw Beau get to was 1.5. Pretty high but we managed them somehow and the next time I tested him, they were 0.9 phew!

Beau was at the Drs last night and has got another ear infection. The grommet in that ear is no longer working, maybe not even there! So the Dr said – next ear infection we will look at getting more grommets. Which scares me as last time Beau had the surgery was 18 months ago, he was 18 months old and a normal healthy boy! Anyways – I am trying not to get worked up about it yet!!!!

In other exciting roller coaster news, 8 days ago my baby turned 3!!!!!!!!! He had such a fun party at the Discovery Room in the museum and then in the cafe after with his bestest friends! All he wanted for his birthday was a ‘Blaze’ (and the monster machines ) cake and blue and green balloons. So those, he did get!! It was super fun and I loved seeing the joy on his face when he saw the balloons, and then his cake!!! His cake was egg free (as he’s allergic!) but unfortunately the amazing shop was unable to make it ‘diabetes free’ lol BUT in saying that he had juice, hot chips, cheerios and wee pizzas plus the cake and he did not go high all day!!! All party day, and then again on his actual birthday the next day! As these are the amazing life days where keeping him in range doesn’t matter as much – you try your best, but you have remember your amazing Type 1 son, is also a normal 3 year old boy!

Beau is literally the light of our lives, as his is big brother. Sometimes man, they drive me to drink – the fighting, OMGOSH the fighting!!!!

Other times – MOST of the time, they make me realise I’m living my dream with my husband and these two stunning boys who are teaching me things every day and teaching each other things and learning from anything they can and all I have ever wanted for my family is to be safe, healthy and happy.

So a recap of the rollercoaster – baby Beau is 3, he has a bad ear infection, his HbA1c is amazing, we are muddling on in this busy thing called life and I AM TRYING MY BEST to be a half decent working mum, but sometimes I do need a minute. I love writing this, it’s giving me a minute. I love having my nails done, that gives me joy. I love coffee, cos – life.  I also love wine, cos – life! lol I love hanging out with my friends, this is something I need to find more time for – friends – if you’re reading this – know that I love you and I miss you and I hope we can catch up one day soon! I am trying to improve some aspects of my life, I am working hard to be more positive, kind to myself and use my time better. They are my first steps – I haven’t got too far as since I made these plans Beau has been sick and that takes over every aspect of life! As it should!!!

Anywho, bed time for me now – I’ve had the day at home with Beau today, KW was yesterday, Nana is tomorrow! Back to work for me – Cooper and I have a Matariki day at school with a shared lunch tomorrow, so I’m looking forward to spending time with him too!

P.S. I promise I won’t just write a blog every time Beau gets sick, I have been due one for a while and meaning to give an update. It’s just a coincidence!

Loving the birthday celebrations! Gorgeous boys!

 

Beau pretty chuffed with his HbA1c!