Kia ora to my loyal blog followers, I haven’t written anything in a really long time.
There are a few reasons for this
- one – there is not a lot of new stuff to say
- two – Beau has become very concerned with what I tell people about what he says
- three – I have next to no time, even if I WANT to write
But anyways, here I am… ready to say some stuff. Or not. But ready for my chosen therapy to hopefully work lol
As always, there are ongoing struggles with Beau’s diabetes. Lately it’s been at school and they have called me not really that happy that some days he is needing to be watched from 9.30-2.30, requiring even more funding out of their pocket for the Teacher Aide to be paid. (They fund an extra hour a day and have done since Beau started but they really want to stop that now.) OR they are upset as they have to double up the classes while the teacher deals with Beau’s lows (they are mostly lows) so I have been in touch with the Diabetes team again and changed some more settings so hopefully the lows can be avoided and we can figure out when to use Beau’s allocated 3 hours a day support.
Ugh. So hard as sometimes he won’t need watched at all and sometimes he will need watched for a lot longer. If required he can do his own finger pricks and with support he can bolus himself for his food but the tricky thing is, he is still hypo unaware – which means he can’t identify when he is low and needs sugar immediately.
Anyways, we are having a meeting at school this week so will see how all that goes…
We are still on the trial and have decided to stay on it until the full year is up, as this means the sensors and good finger pricking strips are free! And from July we will need to pay $100 a sensor that lasts around 7 days. (Not more, only less.) Remember though, we do get the Child Disability Allowance of $46 a week so that will help.
ANYWAYS, many of you will know this year I have also gone back to work full time. This has been really good for me as I am loving the consistency in my class and building up really strong relationships with my awesome kids and their families. It is hard though, in many ways, like the tiredness (!!!!!!!!!) or the not being able to see as much of my own kids after school, or even get into their classrooms and chat to their teachers. So we are still finding our feet, I am just so lucky KW works from home most of the time so he can do drop off and pick up (of Beau, Coops rides his bike to and from school by himself.)
I am still always on my phone so I can message the teachers and TA’s about Beau and his care and the technology etc and Mum is helpful as she comes in every 2 weeks to help with the load and also when KW goes away!!!! But I don’t check Beau’s levels now, I just have my phone on me as if I am needed – whoever is caring for him will just get in touch.
So anyways I mentioned how tired I am…. last night Beau and I had a sleepover in the front lounge and he was high as it was takeaways for dinner. When I went to sleep I just totally died and like 2 hours later his pump and phone were blaring at me saying he was super high and had been high for too long and even though I was RIGHT BESIDE HIM on the mattress – I did not wake up. KW heard it from our bedroom at the complete other end of our (very long) house!!!!!!! Eeeeeeek.. I slept through him coming in and everything. No idea. Shit I feel terrible!!!!! I mean I totally can’t/couldn’t help it, but still. Feel very crap about it. Imagine if it was just me and it was a bad low!!!!!!!!!! FML.
Anyways he is a bit sick today with cold symptoms and not covid (after a weekend of horrific tests lol) so will just need to keep an eye on him.
Our Carer Support hours have been halved this year!! I am not sure if that is because he is now 6 or has had diabetes for 4 years but it means we get 14 days a year respite, not 28! Not that we ever used 28. Also, on that note – if anyone is keen to have the boys for us so we can spend some time together – please let me know!!!!!!!!!!
Better go and do some school work now, I love how I got to sneak this in in the day light hours!!!